Women bleed differently anyway. And for those living with haemophilia or who carry the haemophilia gene, the experience can be even more complex.^1,2

Haemophilia has long been viewed as a male condition and while severe haemophilia is rare in women, that perception has left many women unseen.²

Not all women who carry the haemophilia gene experience symptoms.³  But this doesn't mean they are always unaffected.

Yet women’s experiences are often overlooked, questioned or minimised – particularly when they do not fit the traditional perception of haemophilia.^1,2

It is time to disrupt the assumption.

Around 30 to 50 percent of female carriers have reduced clotting factors and experience bleeding symptoms themselves. Women with mild haemophilia account for around one in five people living with the condition – yet they are often missing from the conversation.⁴

Symptoms can include heavy or prolonged periods, frequent nosebleeds, easy bruising, or prolonged bleeding after injury or surgery. Even when not classified as “severe”, the impact can be significant and disruptive to daily life.^1,2

Many women feel pressure to push through pain, juggle work, family and caregiving roles, and avoid speaking up for fear of being labelled dramatic or difficult.  All while living with unpredictable bleeding month after month.^1,2

When women feel believed, seen and supported, it unlocks better outcomes and greater opportunity and stronger voices within the haemophilia community.

Acknowledging women’s experiences is essential to changing the narrative.