Understanding haemophilia


Haemophilia is a bleeding disorder in which the proteins required for blood to clot are partly or completely missing. As a result, people with haemophilia bleed for longer than average. They bruise easily after minor knocks and bumps, and internal bleeding can also occur into joints, muscles and soft tissues. People with severe haemophilia may experience spontaneous bleeding. Untreated, these bleeds can be very serious, causing acute pain and potentially disabling joint damage.

  • Around 6,000 people live with haemophilia in the UK
  • 90% of whom have haemophilia A – a lack of clotting factor VIII
  • 10% have haemophilia B, which is a lack of clotting factor IX
  • Both conditions occur in mild, moderate or severe forms



This page is intended for members of the UK general public
UK20NNG00003 Date of prep: Feb 2020

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Read our guide for people with congenital haemophilia and their families.

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